Seizures are shared.
Now hope is too.
With fewer seizures, families finally have the ability to live more in the moment. Discover the stories of real people who take EPIDIOLEX.
Your results may vary.
Seizures are shared.
The Care Giver series
Join actor Greg Grunberg as he travels around the country, sharing the stories of caregivers of families living with Lennox-Gastaut syndrome (LGS), Dravet syndrome, and tuberous sclerosis complex (TSC), and giving them a much-needed day of care. Greg is not only an actor, but he’s also a father of 3 sons—one of whom has epilepsy. So he understands what it means to give your all to a loved one. The Care Giver is a series full of incredible stories of caregivers from diagnosis to starting on EPIDIOLEX that will provide you strength and hope in knowing you’re not alone on this journey.
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Meghan, a TSC caregiver
Episode 1: No Timeouts for a Full-time Mom
Greg Grunberg heads to Massachusetts to meet Meghan, mom of 3—including her daughter Cammy, who lives with TSC. From doctor’s appointments to working with her community, Meghan’s been going non-stop for the past 4 years. Now, The Care Giver is here to give this busy mom a well-deserved day off.
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Episode 2: A Match Against Time
In Meghan’s second episode of The Care Giver series, Greg and Meghan sit down to talk about Cammy’s journey and how since starting EPIDIOLEX and having fewer seizures, she’s engaging a bit more and even retaining some skills. Meghan shares how much she loves watching Cammy keep up on the playground with her siblings and friends she’s made at school.
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Episode 3: It Takes a Village
Meghan’s husband, Mike, has been working with Greg to plan a backyard garden soirée. Because of Cammy’s reduced seizures from EPIDIOLEX, Meghan is able to relax a bit at the party; she doesn’t have to hover over Cammy as much as she used to. As the ice cream man pulls up, Meghan reveals her big takeaway: despite being gone all day, everything is still standing.
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Brittany, a Dravet syndrome caregiver
Episode 1: The Obstacle Course of Life
Greg saddles up for a trip to Texas to meet Brittany and her son Kasen, who absolutely loves obstacle courses and lives with Dravet syndrome. Brittany opens up to Greg about the real-life obstacles she’s gone through, from the pressure she feels as a single mom, adapting to Kasen’s diagnosis, and finding time for self-care.
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Episode 2: Learning a Latte About Brittany
Greg and Brittany go to a local cafe for iced lattes and the “me” time Brittany’s been dreaming about. Brittany and Greg agree caregivers can never settle. Brittany tells Greg that after 5 different medications, she began an open dialogue with Kasen’s neurologist about EPIDIOLEX.
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Episode 3: Finding Calm in Chaos
Brittany’s day of care comes to an end as Greg surprises her with a mini relaxation retreat in the park. With Greg’s help, Brittany recognizes that she not only needs to take a break, but that it’s okay to take a break. Brittany acknowledges the rough nights and rough days she’s had on her journey, but is hopeful that Kasen’s future looks brighter with EPIDIOLEX.
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Jon, an LGS caregiver
Episode 1: An Epic Day for an Epic Dad
In this episode, we meet Jon, father to Quinn and Cameron, who is 17 years old and living with LGS. Jon’s wife, Jenn, tells us why Jon is so deserving of a day of care. Next thing they know, Greg knocks on their door and sits down with Jon to talk family, cars, and the unique experience of parenting a child with epilepsy.
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Episode 2: Driving to Diagnosis
Jon and Greg venture out for a dads’ day of care—wait until you see the look on Jon’s face when he sees where they go. They explore the location, then sit down to talk. Jon opens up about Cameron’s diagnosis story, the challenges of living with seizures, and what led them to consider EPIDIOLEX.
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Episode 3: The Winding Road to Treatment
Jon and Greg return from their outing and talk about how Cameron is doing today after being on EPIDIOLEX for a few years. They connect on the importance of “special time” for siblings, and, with reduced seizures, celebrating victories like learning to read, developing friendships, and more.
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Episode 4: Highway to Hope
In the final episode of Jon’s story, we meet Cameron, Quinn, and Jenn as Greg steps into a new role: that of grill master. Greg cooks up some fun with Cam and crew while Jon reflects on the way EPIDIOLEX has shaped his outlook for his family’s future.
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Gloria, a Dravet syndrome caregiver
Episode 1: Big Plans for a Plant Mom
In this episode, we head to Texas to meet Gloria, mother to Grace, who is 9 years old and living with Dravet syndrome. Gloria introduces us to her husband, Ascension, and their older daughter, Maddy. In this tight-knit family, everybody works together to support Grace. Follow Gloria and Greg as they talk about their respective families and what it means to care for someone with a rare epilepsy disorder. Gloria knows caregivers need support, and today, Greg is here to give her a day of care.
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Episode 2: The Healing Garden
Gloria’s day of care is just beginning to blossom as Greg and Gloria take a trip to a beautiful garden to enjoy a little peace with nature. Greg lends an ear as Gloria shares the challenges and self-doubt she experienced while advocating for Grace, such as the process of finding the right doctor for her family.
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Episode 3: A Toast to Hope
Greg surprises Gloria with an afternoon tea in the garden. Over finger sandwiches and small cakes, Gloria shares more about Grace, who Gloria says is her biggest teacher. Before they head out, Gloria talks about how important a positive mindset is when starting a new treatment, and how a little bit of hope and brightness can go a long way.
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Episode 4: A Flourishing Family
Gloria and Greg return to find Maddy and Ascension waiting for them in their home garden. Gloria opens up about Grace’s progress on EPIDIOLEX and talks about achievements in her development, like kicking a soccer ball across the room. Gloria’s day of care has helped her realize the importance of taking care of herself in order to take care of her family.
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Leslie, a TSC caregiver
Episode 1: Portrait of a Caregiver
Greg takes a trip to the Pacific Northwest to meet Leslie and her family, including her daughter, Kelley, who is living with TSC. Like many caregivers, Leslie struggles to prioritize her own self care, but Greg is here to help! Listen and learn as Greg and Leslie talk about rare epilepsy, caregiving, and how discussions like this can help others become more comfortable with special needs.
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Episode 2: The Art of Diagnosis
In this episode, Leslie indulges in her creative side for her day of care with some art therapy. While drawing, they take the time to have a deeper conversation about Kelley and her journey to diagnosis. Though the diagnosis was overwhelming at first, Leslie and her husband learned to manage in the moment instead of going down that slippery slope of “what if?” She and Greg agree, as long as you do what works for you, there is no right way to be a caregiver.
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Episode 3: The Colors of Hope
Leslie and Greg have moved onto their second art therapy activity: painting their hopes and dreams. Leslie reflects on the big changes for Kelley since she started EPIDIOLEX, like moving into an adult home. Together, Greg and Leslie paint their hopes and dreams—and for Leslie, that takes the form of a sunrise.
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Episode 4: A Big Slice of Support
Leslie’s day of care ends with some delicious homemade pizza for the whole family. Leslie gives Greg a piece of advice for new caregivers: they can’t let their fears prevent them from trying a different medication. As Greg says goodbye, Leslie thinks back on the day, and realizes how important it is for caregivers to stop and take care of themselves, too.
Lennox-Gastaut syndrome (LGS)
Meet Cameron1 of 5
At 4 years old, Cameron was diagnosed with LGS, putting him in a relentless cycle of seize and sleep. With EPIDIOLEX, Cameron and his family notice less seizures and experience more loving family moments.
“Every day we’re surprised by Cameron and his potential. It just gives me such joy now.”
Meet Jon2 of 5
After being diagnosed with LGS at 4 years old, Jon struggled to do things on his own. His parents spent years trying multiple treatments until they found EPIDIOLEX. Now, Jon has the seizure reduction he was searching for and the ability to do a bit more all by himself.
“When you’re not as worried about the next seizure, you can actually start to live life. You can start to loosen the reins a little bit. You don’t know what a joy that is.”
Meet Aaron3 of 5
Relentless seizures and unanswered questions left Aaron and his family secluded for nearly 20 years. It wasn’t until age 19 that Aaron was finally diagnosed with LGS. Since being on EPIDIOLEX, Aaron has seen a reduction in seizures which lets him and his family be more social and active together.
“To be where we’re at today is quite a blessing that we didn’t expect.”
Meet Charles4 of 5
For the first 38 years of his life, Charles lived with his family and uncontrolled seizures from LGS. With EPIDIOLEX, Charles experiences fewer seizures and he can live in a long-term care facility where he can explore new interests.
“They can do so many things for him that I can’t do—he has a family here of his peers.”
Meet Steven5 of 5
Steven’s childhood was tough for the whole family as seizures dominated their lives. In his 20s, Steven was finally diagnosed with LGS, which led him to start EPIDIOLEX. As Steven’s seizures became less frequent, he was able to move to a supported living facility where he’s able to gain some independence.
“Before, we really had to rotate around his schedule, but now he gets up in the morning—we are on the go, and it’s a wonderful place to be.”
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Dravet syndrome
Meet Bobby1 of 3
When Bobby was diagnosed with Dravet syndrome, doctors told Bobby’s mother that he wouldn’t live past his third birthday. Now, in his 40s, Bobby lives a life of support at a long-term care facility with less seizures thanks to EPIDIOLEX.
“The care that he gets here is wonderful. I know that he’ll always be safe at this facility and that there will always be a caregiver.”
Meet Grace2 of 3
There’s no better way to describe Grace than “amazing”—especially with her resilience. At just 5 years old, she was spending most of her life having close to 400 seizures a day with Dravet syndrome. Now, with EPIDIOLEX, Grace’s family notices fewer seizures and more smiles.
“She’s a little warrior. She’s been through so much—and she’s so happy. She always wants to play, she always wants to have fun. You know it’s her world and we’re just living in it.”
Meet Zach3 of 3
It took 20 years to get a Dravet syndrome diagnosis for Zach. Those years were frustrating—waiting for answers, waiting for relief, and waiting to grow up. Now, with EPIDIOLEX, Zach has seen a reduction in his seizures and has gained a little more independence.
“The Zach that I know is fun, happy…I really think he’s the happiest person I’ve ever met in my whole life.”
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Tuberous sclerosis complex (TSC)
Meet Kelley1 of 3
Kelley is 26 years old and lives with TSC—but her great sense of humor defines her, in some ways more than her diagnosis. Since she started EPIDIOLEX, Kelley and her family have noticed fewer seizures, and have been able to share more laughs together.
“With fewer seizures, we can look to the future with hope and less of a ceiling to limit what’s possible.”
Meet Kierstin2 of 3
Kierstin may come across as a typical 15-year-old girl, but she’s been living with a rare disorder called TSC since she was an infant. Since she started EPIDIOLEX, Kierstin has experienced fewer seizures and has more freedom to learn and look to the future with hope.
“When Kierstin’s seizures were bad, the whole family was on pins and needles. None of us could do our normal activities.”
Meet Cammy3 of 3
At just 7 weeks old, Cammy started having seizures, eventually having one every 10 minutes, which led to her diagnosis of TSC. At age 2, she started on EPIDIOLEX. With reduced seizures, her personality can really shine and she’s learned to crawl, walk, and even started attending preschool.
“You know she’s going to be the best Cammy she can be and she’s proving that to us literally every single day.”
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Considering EPIDIOLEX?
This brochure is all about the first and only FDA-approved prescription CBD to treat seizures associated with LGS, Dravet syndrome, and TSC.
